“Somedays, I just wish it could be pre-medication. Natural Selection would take its destined course and no one would have to live like I do. Like we do.”
My lung function has reduced by a THIRD within a month. Fuck this. I’m so tired and discouraged
Just straight fucking tired. I feel like shit, absolute fucking shit. There’s a whale sitting on my chest, I can’t breathe through my mouth or my nose, I can’t fucking breathe I just want to FUCKING BREATHE
Day 3: How did you get a diagnosis?
I got a diagnosis through a meconium ileus and a sweat test.
Day 2: How have these illnesses affected your life?
I have daily treatments, near daily doctor’s appointments. I have matured much quicker than almost all people of my age. I am well versed in medical practices and terminology that many have little to no experience in. I live in constant pain and discomfort, I can’t remember the last time that I was completely pain free. I can’t think of an aspect of my life that it hasn’t affected.
Day 1: introduce yourself. What illnesses do you have? How long have you had them?
Hi! My name is Melanie.
I’m sixteen and I’m from the west coast of the USA. The main illness i have is cystic fibrosis. I also have Hashimoto’s thyroiditis, distal intestinal obstruction syndrome, and vitiligo if that counts. I was born with cystic fibrosis, and we discovered my DIOS at age 1 1/2. I was diagnosed with Hashimoto’s a few months ago, the same with vitiligo.